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Chronic pain in EDS involves both nociceptive and neuropathic pain, necessitating a comprehensive pain management approach. The essential components of pain management include non-opioid medications, physical therapy, and psychological support. In this article, we highlight case history and successful pain management in 2 patients with EDS, and also review the relevant literature from the perspective of chronic pain in EDS patients and highlight the role of multidisciplinary treatment. Pain from nerve problems can mimic joint pain from instability, and this feature of EDS/JH seriously complicates the lives of EDS patients and their doctors. EDS patients tend to show multiple complaints, specifically vague, on/off pain involving the limbs or spine. If you have noticed ED after beginning gabapentin, it is important to talk to your healthcare provider. You may be able to improve your sexual function by switching medication, adjusting your dosage, or beginning to take a PDE5 inhibitor, which can improve erections. People who live with HSD or EDS, usually have a very high symptom load from the various affected systems in the body and the associated disorders. Pain is often very prominent, not just created by the underlying problems themselves but also by their consequences. To help manage this pain, a whole-person approach is necessary. It [] Results showed that the 230 women in the study experienced less pain and improved sexual desire, arousal, and satisfaction after taking gabapentin. 1 However, the same can’t be said for men. Gabapentin can cause erectile dysfunction in men. Pain in the Ehlers-Danlos syndromes (EDS) may be linked to the level of joint mobility, how often joints come out of position (dislocate or sublux), how prone the person is to injury, previous surgery, muscle pain, and may become long-term. Background: Ehlers-Danlos syndrome (EDS) is a multifaceted disease that can present with a variety of types of pain. Unfortunately, both the mechanisms and treatments for pain are poorly understood. The proposed treatments for the various musculoskeletal pain syndromes in EDS have At this time, the most meaningful treatment for symptomatic patients is aggressive, humanitarian pain relief. Why does EDS require high-dose opioid therapy? Given the progressive centralized breakdown in connective tissue, patients develop intractable pain that leaves them unable to function. Typically, the need for analgesia rises. This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD—diagnosed or waiting to be diagnosed. This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life. Before participating, please read our rules. Gabapentin turns the knob down until things aren't so noisy any more. It's totally useless outside of nerve pain but I would reason it would help with the sciatica. Lyrica/pregabalin is like gabapentin but with fewer wide effects as it takes a far, far lower dosage to be effective. Usually. Some people still respond better to gabapentin. •Pharmacology: Gabapentin and pregabalin modulate calcium channels and inhibit neurotransmitter release to alleviate neuropathic pain. work by reducing the transmission of pain signals in the central nervous system •Pain Types: Mainly used for neuropathic pain and chronic musculoskeletal pain in EDS and HSD patients Management can focus on treating the cause (like joints coming out of position) and lowering the sensation of pain. Methods of pain management in EDS include physiotherapy, medication, cushions, compressive clothes, and braces, as well as behavioral adaptation. There are many people with EDS who use Gabapentin successfully to treat nerve pain. The most common side effect is drowsiness, so some people use it at bedtime to help with pain during the night. Gabapentin is used to treat postherpetic neuralgia, a type nerve pain that can occur due to an outbreak of shingles, and restless legs syndrome (RLS), an uncomfortable urge to move your legs around, often at night. Official answer: Unfortunately gabapentin can cause impotence. Side effects of the Urogenital System: Infrequent: urinary tract Depending on a few factors, the best way to treat ED from gabapentin is either by changing or reducing the medication, using a PDE5 inhibitor like Viagra or Cialis, a vacuum erection device, or self-injection ED therapy. I am currently on Gabapentin for chest pain stemming from surgery to correct my continuously collapsing lung- was left with chronic nerve pain in my chest. I found Gabapentin caused drowsiness to begin with, but I seem to have become adjusted now- some fatigue, but no worse than usual. The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner. i've been on gabapentin for years. after my diagnosis the pain management center suggested i up the dose. i am on several meds so i don't know how much brain fog is from what. but the gabapentin really helps certain kinds of pain. i don't have reactions to drugs in general, though, so i might not be usual. but i would sure give it a try. During her emergency department visit, after evaluation by a multidisciplinary team (orthopaedic surgeon, cardiologist, pain medicine specialist, physical medicine and rehabilitation) and concluding that the pain was neuropathic and associated with her POTS diagnosis, the patient was prescribed gabapentin for her neuropathic pain, tizanidine as
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